Daren Jonescu
The agonising case of Charlie Gard, the 11-month-old baby dying from a rare form of mitochondrial disease, has finally reached its sad and inevitable conclusion with the announcement of his death.
The hospital refused to agree [to the parents' requests to take Charlie home to die] because of the difficulties of providing the particular ventilation and other procedures for Charlie at home and the potential for causing him yet more distress.
The parents deserve only our most profound sympathy. Their unremitting rage at the hospital has to be seen in the context of mind-altering grief.
For did all those people -- who demonstrated outside the court and shrieked that the staff at GOSH were "murderers", or wrote ignorant and intemperate opinion pieces in the American media declaring that only the parents had the right to decide what was in the best interests of their child -- really believe that parents know better than neurologists about damage that has been done to the brain?
This case had absolutely nothing to do with the state or the government. This was not Charlie’s parents versus the state. This was Charlie’s parents versus the medical profession, a conflict in which the courts were brought in as the dispassionate arbiter in the best interests above all of the sick child.
The commentary emanating from the United States, however, was staggeringly ill-informed. The website American Thinker, for example, ran one hysterical piece after another. Thus the case represented “a perfect crystallization of the full heart and soul of socialized or ‘single payer’ healthcare”, a “tyrannically impersonal ‘medical system’” in which “the individual human being is property of the state”.
I'll take a humble bow as the author of that particular "hysterical piece." Ms. Phillips goes on to quote more isolated lines from my articles on this case, along with lines from articles by other American Thinker writers.
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